Bylaws
§ 1.
The aim of the Nordic ITP Group is to improve the management of patients with Immune Thrombocytopenia through research and education. This will be achieved by enhancing inter-Nordic research collaboration, shared resources, continuous education, development and updating of guidelines, guidance documents and educational material.
§ 2.
The Steering Committee will be comprised of 10 members from the 5 Nordic countries. The members will be nominated by the national groups. The Steering Committee will elect a chairman, secretary, and a treasure, each serving a two-year mandate. The same individuals can be re-elected based on group consensus. The committee will meet for at least two meetings annually. Between meetings, the chairman and the scientific secretary are responsible for following through with meeting action items.
§ 3.
The group will hold at least one scientific meeting per year. These meetings are open to any clinician or scientist with an interest in ITP including colleagues from outside the Nordic countries.
§ 4.
The Nordic ITP Group shall have members from Denmark, Finland, Iceland, Norway, and Sweden.
§ 5.
The activities of the Nordic ITP Group will be financed by unrestricted research grants from pharmaceutical companies, applications for research grants from other sources, donations, and scientific meetings. The Nordic ITP Groups’ financial account is currently located at Østfold Hospital. The chairman and the treasurer are responsible for the account and shall present the balance annually to the Steering Committee.
§ 6.
New research ideas and protocols, and changes in bylaws should be communicated to the members of Nordic ITP Group at least one week before the next major group meeting.
§ 7.
The Nordic ITP Group shall develop a website to promote the group and its activities.
§ 8.
The group will have a strong focus on collaboration and involvement of patient advocacy groups in the Nordics to address patients’ perspectives and needs.